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Okay its been a while
Mar. 11th, 2014 12:26 pmLots of change.
The biggest one is that we finally had to pull Colleen out of school and enroll her in the all online program. Well actually its the same school, just all online. I really didn't want to do this BUT as it turns out, this has freed us. No more long involved tears tantrums and drama. I set a firm schedule with expectations and so far she has stuck to it and my little sunshine girl is back. Her lowest grade at the moment is a C and the rest are all A's and B's but better than that she is meeting and/or exceeding her due dates. Needless to say this success has buoyed her spirits and although she still has crippling anxiety attacks we are starting to be better able to isolate the triggers since it isn't full out all the time freak out mode.
As for me, well had a scary thing right before Val day, I ran out of air passed out and met the floor with my face full force. Broke my nose, my thumb hurt my rotator cuff in my shoulder and gave myself some amazing bruises too. oh and a ambulance ride in a snowstorm. Sigh, I am mostly recovered but the next day they came and took away my oxygen machine (unrelated) Then I got to do testing and proved (again) that I still need supplemental oxygen so now they have to begin the process to get my machine back. I would scream but it takes too much air.
On the upside, I got a scholarship(congoingship?) from Wiscon so I am finally going to be able to go. Eric is coming with me in a highly worked out deal involving me getting Wiscon and him getting less complaining about Convergence at least this spring.
I am on a new nebulized medicine which has given me what my (I fear) become a permanent husky Kathleen Tirner quality for my voice BUT!!!! while it is in effect, I am able to breathe much better and it is a vaso dilator so one can assume I feel like I breathe better becasue more oxygen is circulating in my system. Whee!!!
I do have to do a new round of IV iron infusions becasue as usual they ran tests and my iron is low. (Okay squicky medical next) about half the time my body has decided that digesting anything but yogurt and fresh fruit is too much trouble so it just passes everything along post haste. Living on smoothies, milkshakes and strawberries is not my idea of fun....I get hungry but then often I am punished for eating. Today we tried a grilled cheese sandwich with oragnicish cheese (no preservatives) real butter and healthyish white bread. Hope springs eternal.
The biggest one is that we finally had to pull Colleen out of school and enroll her in the all online program. Well actually its the same school, just all online. I really didn't want to do this BUT as it turns out, this has freed us. No more long involved tears tantrums and drama. I set a firm schedule with expectations and so far she has stuck to it and my little sunshine girl is back. Her lowest grade at the moment is a C and the rest are all A's and B's but better than that she is meeting and/or exceeding her due dates. Needless to say this success has buoyed her spirits and although she still has crippling anxiety attacks we are starting to be better able to isolate the triggers since it isn't full out all the time freak out mode.
As for me, well had a scary thing right before Val day, I ran out of air passed out and met the floor with my face full force. Broke my nose, my thumb hurt my rotator cuff in my shoulder and gave myself some amazing bruises too. oh and a ambulance ride in a snowstorm. Sigh, I am mostly recovered but the next day they came and took away my oxygen machine (unrelated) Then I got to do testing and proved (again) that I still need supplemental oxygen so now they have to begin the process to get my machine back. I would scream but it takes too much air.
On the upside, I got a scholarship(congoingship?) from Wiscon so I am finally going to be able to go. Eric is coming with me in a highly worked out deal involving me getting Wiscon and him getting less complaining about Convergence at least this spring.
I am on a new nebulized medicine which has given me what my (I fear) become a permanent husky Kathleen Tirner quality for my voice BUT!!!! while it is in effect, I am able to breathe much better and it is a vaso dilator so one can assume I feel like I breathe better becasue more oxygen is circulating in my system. Whee!!!
I do have to do a new round of IV iron infusions becasue as usual they ran tests and my iron is low. (Okay squicky medical next) about half the time my body has decided that digesting anything but yogurt and fresh fruit is too much trouble so it just passes everything along post haste. Living on smoothies, milkshakes and strawberries is not my idea of fun....I get hungry but then often I am punished for eating. Today we tried a grilled cheese sandwich with oragnicish cheese (no preservatives) real butter and healthyish white bread. Hope springs eternal.
